Home KD Awareness Day Facts

CoRDS Registry

Kawasaki Disease Foundation Australia has partnered with Sanford Coordination of Rare Diseases (CoRDS) Registry.

This is an international and Central registry of individuals of any age who have been diagnosed with a rare disease. It was primarily developed to meet an unmet need for patient registries worldwide.

If you or a family member has been diagnosed with KD, you can help researchers see the whole picture.

To enrol in the CoRDS registry, or for more information, visit www.sanfordresearch.org/cords


'It's National #KawasakiDisease Awareness Day and we're spreading awareness at the California State Capitol! What are you doing today? Share your pictures with us!'

 

KD Awareness Day Facts

(sourced from the U.S. KD Foundation FaceBook page.)

 

Did you know that on January 26, 1961, Dr. Tomisaku Kawasaki of Japan had his “aha” moment when he saw his second patient with the telltale signs of what would later be named Kawasaki Disease? Because of this, the KD foundation chose January 26 to be Kawasaki Disease Awareness Day.

 

Did you know that on January 26, 1961, Dr. Tomisaku Kawasaki of Japan had his “aha” moment when he saw his second patient with the telltale signs of what would later be named Kawasaki Disease? Because of this, the KD foundation chose January 26 to be Kawasaki Disease Awareness Day.


KD Fact #1

Although ‪Kawasaki Disease‬ is more prevalent among children of Asian and Pacific Island descent, KD affects people of all racial and ethnic groups.

 

KD Fact #2

Kawasaki Disease is characterized by an inflammation of the blood vessels throughout the body.

 

KD Fact #3

Without treatment, about 25% of children develop heart disease involving the coronary arteries. Timely diagnosis and treatment of ‪‎Kawasaki Disease‬ (which usually includes intravenous gamma globulin) is highly effective in preventing coronary complications.

 

KD Fact #4

There is no specific test for KD; doctors make a clinical diagnosis based on a collection of symptoms and physical findings. Early symptoms of KD include:

-Fever that lasts for five or more days
-Rash, often worse in the groin area
-Red bloodshot eyes, without drainage or crusting
-Bright red, swollen, cracked lips, "strawberry" tongue, which appears with shiny bright red spots after the top coating sloughs off
-Swollen hands and feet and redness of the palms and soles of the feet
-Swollen lymph nodes in the neck

 

KD Fact #5

By itself, strawberry tongue is insufficient for a diagnosis of Kawasaki Disease, in that it can also appear in patients with scarlet fever, which is a streptococcal infection.

 

KD Fact #6

In children with incomplete Kawasaki disease, the time between onset of symptoms and diagnosis has been reported to be longer, and they are less likely to receive IVIG than children with complete presentation.

 

KD Fact #7

Kawasaki Disease is not contagious.

KD Fact #8

11% of KD children have episodes of recurrent peeling of the skin for several years after their recovery.

KD Fact #9

Kawasaki Disease can't be prevented, but usually has telltale symptoms and signs that appear in phases.

KD Fact #10

Some kids with Kawasaki Disease are put on a low dose of aspirin for a long time to prevent heart problems. It's very important for these children to get their annual flu shot to help prevent viral illnesses while they are taking the aspirin. This is because there's a risk of Reye syndrome, a rare but serious illness, in children who take aspirin during a viral illness. Always talk to your doctor before giving any of your kids aspirin. (kidshealth.org)

KD Fact #11

Rates of recurrence and familial occurrence of Kawasaki Disease are best documented in the literature from Japan; these rates may be lower in other races and ethnicities. In Japan, the recurrence rate of Kawasaki Disease has been reported to be ≈3%. The proportion of cases with a positive family history is ≈1%. Within 1 year after onset of the first case in a family, the rate in a sibling is 2.1%, which is a relative risk of ≈10-fold as compared with the unaffected Japanese population; ≈50% of the second cases develop within 10 days of the first case. The risk of occurrence in twins is ≈13%. Higher rates of Kawasaki Disease in the siblings of index cases and twins suggest a possible role for genetic predisposition that interacts with exposure to the etiologic agent or agents in the environment. The reported occurrence of Kawasaki Disease in children of parents who themselves had the illness in childhood also supports the contribution of genetic factors.

 

KD Fact #12

National Kawasaki Disease Awareness Day is January 26. Join us and help bring Kawasaki Disease to the awareness of your community.

KD Fact #13

Untreated cases of Kawasaki Disease can lead to more serious complications, such as vasculitis, an inflammation of the blood vessels. This can be particularly dangerous because it can affect the coronary arteries, which supply blood to the heart.

KD Fact #14

Kawasaki Disease is the #1 cause of acquired heart disease in U.S. children.

KD Fact #14    Kawasaki disease is the #1 cause of acquired heart disease in U.S. children.

 

KD Fact #15

KD Fact #15


KD Fact #16

A recent study on health risks to women with a history of Kawasaki Disease and their offspring found that the health risks for mothers with no KD-related coronary artery damage were similar to the general population. For women with aneurysms, the risks were low with appropriate management and care.

KD Fact #17

KD Fact #17

 

KD Fact #18


KD Fact #18

 

KD Fact #19


KD Fact #19


KD Fact #20

One of the symptoms of ‪‎Kawasaki Disease‬ include a rash that is often worse in the groin area. This is one of the symptoms of KD which is accompanied by a high fever that lasts at least five days.

Incomplete cases of KD can be diagnosed when two or more KD symptoms are present and accompanied by a high fever. Other KD symptoms include: bloodshot eyes, swollen lymph node in neck, red palms and soles and swollen hands and feet, and bright red, swollen, cracked lips, "strawberry" tongue, which appears with shiny bright red spots after the top coating sloughs off.

KD Fact #20    One of the symptoms of #KawasakiDisease include a rash that is often worse in the groin area. This is one of the symptoms of KD which is accompanied by a high fever that lasts at least five days.     Incomplete cases of KD can be diagnosed when two or more KD symptoms are present and accompanied by a high fever. Other KD symptoms include: bloodshot eyes, swollen lymph node in neck, red palms and soles and swollen hands and feet, and bright red, swollen, cracked lips,


KD Fact #21

One of the symptoms of ‪Kawasaki Disease‬ include bright red, swollen, cracked lips, "strawberry" tongue, which appears with shiny bright red spots after the top coating sloughs off. This is one of the symptoms of KD which is accompanied by a high fever that lasts at least five days.

Incomplete cases of KD can be diagnosed when two or more KD symptoms are present and accompanied by a high fever. Other KD symptoms include: bloodshot eyes, rash, swollen lymph node in neck, red palms and soles and swollen hands and feet.

KD Fact #21    One of the symptoms of #KawasakiDisease include bright red, swollen, cracked lips,


KD Fact #22

One of the symptoms of ‪Kawasaki Disease‬ include red bloodshot eyes, without drainage or crusting. This is one of the symptoms of KD which is accompanied by a high fever that lasts at least five days.

Incomplete cases of KD can be diagnosed when two or more KD symptoms are present and accompanied by a high fever. Other KD symptoms include: "strawberry" tongue, which appears with shiny bright red spots after the top coating sloughs off, red palms and soles and swollen hands and feet, rash, swollen lymph node in neck.

KD Fact #22    One of the symptoms of #KawasakiDisease include red bloodshot eyes, without drainage or crusting. This is one of the symptoms of KD which is accompanied by a high fever that lasts at least five days.     Incomplete cases of KD can be diagnosed when two or more KD symptoms are present and accompanied by a high fever. Other KD symptoms include:


KD Fact #23

One of the symptoms of ‪#Kawasaki Disease‬ include red palms and soles and swollen hands and feet. This is one of the symptoms of KD which is accompanied by a high fever that lasts at least five days.

Incomplete cases of KD can be diagnosed when two or more KD symptoms are present and accompanied by a high fever. Other KD symptoms include: "strawberry" tongue, which appears with shiny bright red spots after the top coating sloughs off, rash, swollen lymph node in neck and red bloodshot eyes, without drainage or crusting.

KD Fact #23    One of the symptoms of #KawasakiDisease include red palms and soles and swollen hands and feet. This is one of the symptoms of KD which is accompanied by a high fever that lasts at least five days.     Incomplete cases of KD can be diagnosed when two or more KD symptoms are present and accompanied by a high fever. Other KD symptoms include:


KD Fact #24

One of the symptoms of ‪#Kawasaki Disease‬ include a high fever that lasts at least five days. This is one of the symptoms of KD which is accompanied by all or some of the other KD symptoms listed below.

Incomplete cases of KD can be diagnosed when two or more KD symptoms are present and accompanied by a high fever. Other KD symptoms include: "strawberry" tongue, which appears with shiny bright red spots after the top coating sloughs off, rash, swollen lymph node in neck and red bloodshot eyes, without drainage or crusting, and red palms and soles and swollen hands and feet.

KD Fact #24    One of the symptoms of #KawasakiDisease include a high fever that lasts at least five days.  This is one of the symptoms of KD which is accompanied by all or some of the other KD symptoms listed below.     Incomplete cases of KD can be diagnosed when two or more KD symptoms are present and accompanied by a high fever. Other KD symptoms include:


KD Fact #25

One of the symptoms of ‪Kawasaki Disease‬ include swollen lymph nodes in the neck. This is one of the symptoms of KD which is accompanied by a high fever that lasts at least five days.

Incomplete cases of KD can be diagnosed when two or more KD symptoms are present and accompanied by a high fever. Other KD symptoms include: "strawberry" tongue, which appears with shiny bright red spots after the top coating sloughs off, rash, red bloodshot eyes, without drainage or crusting, and red palms and soles and swollen hands and feet.

KD Fact #25    One of the symptoms of #KawasakiDisease include swollen lymph nodes in the neck. This is one of the symptoms of KD which is accompanied by a high fever that lasts at least five days.     Incomplete cases of KD can be diagnosed when two or more KD symptoms are present and accompanied by a high fever. Other KD symptoms include:

 

5th National KD Awareness Day - TODAY, JANUARY 26, 2015


 

National Kawasaki Disease Awareness Day is today,  January 26, 2015.     Please help to spread the word about KD by talking to people you meet, friends and family.    The key is to tell people about KD - what it is, who it can affect, and most importantly, the signs and symptoms to look for as well as where to go if they have questions (www.kdfoundation.org).     You can also participate through our $26 on the 26th campaign. Donate $26 (or any amount) and all funds raised go towards KD research!    Share your pictures, status updates and tell us what you're doing to raise KD awareness in your town. #KawasakiDisease #KDAwareness

 

Every time we help educate our communities on the symptoms of KD, we help save a child's heart!

'Thank you to everyone who participated in bringing #KawasakiDisease to the awareness of others. Every time we help educate our communities on the symptoms of KD, we help save a child's heart! #KDAwareness Day 2015!'

 

In 2014 and 2015 The County of Hawaii declared the 26th of January as KD Awareness Day after 13 year old Evan Sato wrote a letter to the Mayor. Evan's younger sister Maya (a twin) was diagnosed with KD in 2012.

 


Evan with Executive Assistant to Mayor Char Shigemura January 2015             

Evan, Will and Maya with Mayor Billy Kenoi January 2014

 

HeartKids Victoria/Tasmania also listed facts for their awarenss month in February and posted the following fact:

Some children acquire heart conditions during childhood, for example cardiomyopathy, Kawasaki disease or as a result of rheumatic fever.

CHD AWARENESS FACT: Some children acquire heart conditions during childhood, for example cardiomyopathy, Kawasaki disease or as a result of rheumatic fever. #chdaware #HeartKids #1in100