|
Links There is currently a research study looking at Kawasaki disease based in Australia and involving many countries around the world. This study is being coordinated from Perth but involves families from all over Australia. The study is looking at what makes children who develop Kawasaki disease different, to try to understand what causes the condition in the first place. It is the largest study of its type in the world and hopefully will lead to better diagnosis, treatment and ultimately preventative measures, such as vaccines, for Kawasaki disease. For further information of this exciting research follow this link.
Kawasaki Disease Foundation Newsletter - April 2012 - Current and future KD research Click Here Kawasaki Disease Foundation Newsletter - September 2013 Click Here Kawasaki Disease Foundation Newsletter - December 2014 Click Here Kawasaki Disease Foundation Newsletter - April 2015 Click Here Kawasaki Disease Foundation Newsletter - December 2015 Click Here Kawasaki Disease Foundation Newsletter - March 2016 Click Here Kawasaki Disease Foundation Newsletter - December 2016 Click Here Kawasaki Disease Foundation Newsletter - October 2018 Click Here Kawasaki Disease Foundation Newsletter - December 2018 Click Here Kawasaki Disease Foundation Newsletter - February 2019 Click Here
Kawasaki Disease Research Center Rady Children's Hospital - San Diego - Summer 2018 Click Here
Hawaii
CanadaThis Canadian Parent awareness group which has been offering support for 10 years officially launched their Facebook page on March 1st 2015, in honour of Rare Disease Day - Facebook Parent Awareness - Website www.Kdcanada.ca For further information on KD in Canada - www.kdcanada.org KD Canada Winter 2015 Newsletter - (Click Here)
SingaporeA new KD support group has also been formed in Singapore. Click here to read more about this group.
UKSupport Group UK - http://www.kssg.org.uk/ Societi - https://www.societi.org.uk/ Children's Heart Federation (UK) - www.chfed.org.uk
Heartkids Victoria/TasmaniaHeart Kids - www.heartkids.org.au
The following publicity articles by parents and KD patients tell the story of KD from non-medical points of view and have been used to assist the Foundation with awareness
Fundraising Event, Warragul and Drouin Gazette- Newspaper Article N.S.W Nomination for Pride of Australia Fraser Coast Chronicle - Benjamin Wells The following articles were published about our Information Session held at the Royal Children's Hospital in 2010. Article on Cameron Article on Jack Article on Cody Article on Anastasia
James Jesson is doing a Journalism and Public Relations Course at RMIT. He had Kawasaki Disease when he was 3. His story was published in Living Now in October 2011 and can be read here. The Heartbreaking disease - Faye Triantafillopoulos shares her story in a Greek Newspaper Read here Lilydale Leader - Stacey Kinsmore tells about her son Jake The Standard - Stadium stompers climb for a cause close to home The Advocate - Family builds support network for Kawasaki diagnosis Bendigo Advertiser - Bringing smiles in the face of Kawasaki Disease
These articles are from overseas KD parents
Globe Article - Donna Collins, U.S. KD Foundation Sunday Tribune - Mark Satiya President of the KD Foundation of South Africa Recent KD stories from overseasBaylee Littrell on surviving Kawasaki Disease - Click Here
Our medical advisor Dr. David Burgner has had a number of papers/studies published in medical journals but has also done the following publicity/awareness
Perth ACA - Dr. David Burgner Hearld Sun - November 2011
Triple R Interview with Dr. David Burgner -   ABC Radio Interview by Dr. Burgner - January 2016 - Click Here
|
Home 
Links
Links
