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CoRDS Registry

Kawasaki Disease Foundation Australia has partnered with Sanford Coordination of Rare Diseases (CoRDS) Registry.

This is an international and Central registry of individuals of any age who have been diagnosed with a rare disease. It was primarily developed to meet an unmet need for patient registries worldwide.

If you or a family member has been diagnosed with KD, you can help researchers see the whole picture.

To enrol in the CoRDS registry, or for more information, visit www.sanfordresearch.org/cords


About Us

Kawasaki Disease Foundation Australia is a national non-profit parent-led charity dedicated to advancing KD issues by raising awareness, supporting families, promoting and supporting research as well as striving to increase early diagnosis and treatment.

 

Although each of our experiences was different we all felt a terrible sense of isolation and fear of the unknown----none of us knew anything of KD when it struck our children. We hope we can help others understand KD a little more and help to explain what treatment, medication and future follow up to expect -while in hospital and at home.

 

Approximately 200 Australian children are diagnosed with KD each year but it is important to remember that over 90% make a full recovery. Every family who experiences KD has a unique experience---your experience will not be quite like anyone else's. And the impact KD has on your child and his/her health will be unique too. Some of our children have had no heart involvement and have fully recovered while others have been left with aneurysms. We therefore are able to offer advice on a range of situations.

 

Professor David Burgner, from Murdoch Childrens Research Institute and Monash Medical Centre is medical advisor to the Kawasaki Disease Foundation. Please direct any queries to the KD Foundation.

 

Our Mission

 

  • To provide education, information and support to people and families affected by Kawasaki Disease.

  • To provide education, information and assistance to professionals who provide services to people and families affected by Kawasaki Disease

  • To provide community awareness about Kawasaki Disease in order to assist with early diagnosis and treatment