Home State Support Volunteers

CoRDS Registry

Kawasaki Disease Foundation Australia has partnered with Sanford Coordination of Rare Diseases (CoRDS) Registry.

This is an international and Central registry of individuals of any age who have been diagnosed with a rare disease. It was primarily developed to meet an unmet need for patient registries worldwide.

If you or a family member has been diagnosed with KD, you can help researchers see the whole picture.

To enrol in the CoRDS registry, or for more information, visit www.sanfordresearch.org/cords


State Support Volunteers


The following KD parents have offered to be state support volunteers. When a child is diagnosed with Kawasaki Disease it can be a very confusing and stressful experience for everyone. As parents who have been through this experience they may be able to provide support based on their own personal experience. Please note support volunteers do not provide medical advice. If you are seeking medical advice you should contact your child's G.P or Paediatrician. Some general queries may be able to be forwarded to our medical advisor Dr. David Burgner who is based at the Mudoch's Childrens Research Institute.


Victoria/National Coordinators

Shirley Mates
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Aylee Sunstrom
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Other parents willing to offer support

Bec Bailey, whose 13 month old son had KD in 2011 is willing to offer support to other parents. She lives in Geelong and is a qualified and practising social worker. She can be contacted on This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 

Tasmania

Penny Scott, whos daughter Billie Grace was diagnosed in Oct, 2014 at 17 months is also willing to offer support - This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 

New South Wales
1) Janet and Darren Sloane This e-mail address is being protected from spambots. You need JavaScript enabled to view it
2) Peta Lindsay This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 

Queensland
1) Salome Mariner-Borg This e-mail address is being protected from spambots. You need JavaScript enabled to view it
2) Kate and Charlie Hemming This e-mail address is being protected from spambots. You need JavaScript enabled to view it
3) Angela Jordan This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 

South Australia
Nidal Raslan is our South Australian coordinator.

She can be contacted via email This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 

Western Australia

Simone Staaden is our Western Australia coordinator and our representative for GARDN (Genetic and Rare Disease Network).

She can be contacted via email This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 

Maria Davey, whose 5 month old son had Kawasaki Disease in December 2012 is willing to offer support and raise awareness of Kawasaki Disease in W.A.

She can be contacted via email  This e-mail address is being protected from spambots. You need JavaScript enabled to view it