Home Our Stories

CoRDS Registry

Kawasaki Disease Foundation Australia has partnered with Sanford Coordination of Rare Diseases (CoRDS) Registry.

This is an international and Central registry of individuals of any age who have been diagnosed with a rare disease. It was primarily developed to meet an unmet need for patient registries worldwide.

If you or a family member has been diagnosed with KD, you can help researchers see the whole picture.

To enrol in the CoRDS registry, or for more information, visit www.sanfordresearch.org/cords


Sporle Family

 

Written By Cody Sporle

Written by Cody for his school newsletter September, 2009 to help advertise Foundation Shopping Tour.

In November 2006, when I was in prep, I was very sick. I got tired, had temperatures over 40˚C and got a bright red rash all over my body. My Nan came over to look at me and told mum to take me to hospital. My Nan thought I had scarlet fever.

When we were in the waiting room at emergency I had to have this special icy pole. I didn’t really like it. Then after I finished my icy pole they took me through to a bed so I could see a doctor. The doctor looked at my rash and nearly sent me home but then she remembered that I had pains in my tummy. When she felt my tummy she noticed my liver was four adult fingers in size. She then ran some tests on me.

We slept in the emergency bed all night and then we got sent up to the kids ward. I had more blood tests and was put on a drip. In my room I had this awesome T.V. that had games and movies etc. I got to play it when ever I was bored. The next day my skin started to peel on my hands and feet and one of the doctors (Dr Chin) suggested it might be Kawasaki Disease (which is not related to motorcycles). Lucky my doctor had been studying Kawasaki Disease and helped me. He put me on aspirin straight away and sent me for an echocardiogram which is like an ultrasound of my heart. Kawasaki Disease can cause swelling in the arteries. Luckily all my echocardiograms came back clear.

I spent six days in hospital. After about 3 months I was better and now I don’t have to visit Dr Chin unless I want to say hello.