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KD Research Study

Did you or your child have Kawasaki disease in the past?

The study will explore why some children develop the illness by looking at the response of immune cells (that fight infection), their longer term cardiovascular (heart and circulation) health, and factors in the blood that may suggest ongoing inflammation and cardiovascular abnormalities of these children. ?

Recruiting Now

You may be suitable if you/your child are:

• Aged 6 to 30 years

• Interested in your cardiovascular health

• Able to attend the Heart Research department for a one off study visit (travel costs* will be reimbursed) • The study visit will involve a blood test, ultrasounds, blood pressure measurement and eye photographs

Contact Dr Katherine Chen for more information on 9936 6553 or email katherine.chen@mcri.edu.au *Parking costs at the Royal Children’s Hospital and public transport within Victoria


Welcome!

This site has been set up for the purpose of creating a support network and information exchange for families in Australia who have been affected by Kawasaki Disease.

Feel free to contact us for a chat, more information or just to let us know how you have been affected by K.D. This will enable us to gather more information about the incidence rate here in Australia and the long-term effects it has on your family emotionally as well as medically.

For more information on the disease itself check out our information, FAQ and links pages. Please remember information on this website is provided as a general resource and should not be used as a diagnostic or treatment tool. 

Latest KD News

Fundraising Opportunities 
We are now registered with Go Fundraise which allows out supporters an increased range of options to fundraise.
These can be direct donations or in the form of:
  • Personal Challenge
  • Celebration
  • In Memory
  • Special Occasion
  • Making a Difference
  • Event Specific
fundraising pages where funds raised directly benefit the Foundation.
For further details click on to our page here http://www.gofundraise.com.au/beneficiary/KawasakiDiseaseFoundation

 

Another way to make a donation is through PayPal

Make a Paypal Donation...

 

 

All donations over $2 are tax deductible.

 

MCG Stadium Stomp

Sunday 6th July, 2014

A team made up of employees from the Dandenong, Melbourne, Ballarat and Warrnambol branches of Stringer Clark Lawyers has entered a team in the MCG Stadium Stomp to raise funds for the Foundation. They were inspired after reading a story that Brooke Dean from the Warrnambool office wrote about her son who was diagnosed with Kawasaki Disease earlier this year. Stringer Clark has 24 branches in Victoria so Brooke's story has raised a lot of awareness of KD.

 

As a result of their support Brooke herself will also be stomping her way around the stairs of the MCG levels 1+4, incorporating over 7,000 steps before finishing on the ground of the MCG.

 

We would like to thank the team involved in this event and to everyone who donates on their behalf.

 

Click here to view an article in the Standard newspaper.

Click here to view photos of the event.

 

Attention N.S.W Families

Shirley and Aylee (National Coordinators) will be visiting Newcastle on Sat. 26th July. Please come and meet us and other KD families.

We will be having a Morning Tea from 10:30 at the Mattara Hotel, 333 Charlestown Road, Charlestown. The hotel has a child friendly cafe.

We will also be having Afternoon Tea from 3:30pm at the Gosford R.S.L, 26 Central Road, West Gosford. The R.S.L also has a child friendly cafe.

In addition, we will be in SYDNEY Sat evening where you can join us for dinner. On Sunday 27th we will be attending the Auroma Festival at the Rocks.

We look forward to meeting you.

 

Latest published article in Australia

Our medical advisor Dr. Burgner, who is based at the Murdoch Children's Research Institute Melbourne conducted a study in conjunction with the Princess Margaret Hospital for Children (W.A). looking at the incidence of Kawasaki Disease. Their results found the number of cases is on the rise and over the last 30 years has increased markedly and was also three times higher than previously thought.

The study has just been published in the leading child health journal Pediatrics. To read this study click here: Study Paper

 

Our medical advisor Dr. Burgner, who is based at the Murdoch Children's Research Institute and Dr. Michael Cheung, who is Director of Cardiology at the Royal Children's Hospital Melbourne, has also had an article on Kawasaki Disease in the Australian Family Physician which is published by the Royal Australian College of General Practitioners.

This article stresses the importance of prompt recognition and early referral. It is very easy to read and an excellent resource for any medical professionals. To read this article - click here.

 

The KD Foundation Co-ordinators recently addressed the Maternal Health Nurses at the Geelong Regional meeting. We presented them with an awareness package including a copy of this article.

To see a photo of this presentation - click here.

KD foundation is now on Facebook. 'Like and share our page'.

Last year we had a supporter compete in the Sydney Marathon as part of the Blackmores running festival and in October our medical advisor Dr. Burgner and another KD parent competed in the Melbourne Marathon.
We would like to thank them for their efforts and to the many people who donated on their behalf to support our work.

 

Registrations are now open for this year.

 

 

This year David and his son competed in the annual Melbourne "City to Sea" run held on Sunday 17 November.

Thanks to the generous sponsorship from our KD families and friends nearly $600 was raised for the foundation. Donations can still be made at run.gofundraise.com.au/page/BurgnerD

or through our general GoFundraise page.


The Blackmore Sydney Running Festival will be held on September 22nd 2013.

Registrations are now open and if you 'run for a cause' you can run for free. Please let us know if you are interested in supporting us.

 

Melbourne Marathon - 13th October 2013

Join thousands of runners and walkers on Sunday 13th October to take part in Melbourne's premier event: 2012 was a huge success so why not get a team together, get involved and help raise even more. We can assist with creating a team page.


Click here for photos of the Melbourne Marathon and Quinn who had KD recently. He was the inspiration for his mum competing in her first marathon.

 

Very Exciting News
In the U.S on the 28th March, Grey's Anatomy (Medical T.V Show) featured a story "that's near and dear to many of us - the story of a mother's intuition and a child's fight for life before he was diagnosed with Kawasaki Disease.
The episode starred actress and KD parent Sarah Chalke, as she relived one of the worst nightmares parents can go through - fighting for a correct diagnoses for her sick child". (from U.S Foundation Website)
The little boy who played the role of Sarah's son on the show has also had KD.

 

Although it was only a minor story line it was a wonderful opportunity for the U.S Foundation to increase awareness and raise funds. Sarah has since been on several talk shows talking about KD.

 

The ABC program Catalyst on ABC1 in Melbourne ran a story on Kawasaki Disease on the 17th May 2012. This is the first time an extended program segment about KD has been shown on Australian television.
You can watch this story plus view extended interviews by clicking on the following link - Click here

 

Sydney Information Session

Following the success of our Information Session in Melbourne we held an Information Session at The Sydney Children's Hospital in September 2012. We are hoping to provide more of these sessions in the future.

 

Kawasaki Disease Awareness Day
January 26th 2011 was the first National Kawasaki Awareness Day. This is now an annual event in the U.S Read full information here...
 

Sponsors

Kiwanis Club of Doncaster -- We are very fortunate that the Kiwanis Club of Doncaster - Templestowe has chosen to assist our vital support work by funding this site. Through it they are changing for the better the lives of many children and families affected by Kawasaki Disease.
P+D Thompson PTY. LTD Tax Agents (Doncaster) PH: 9842 7808
Rotary Club of Belgrave
To become a sponsor, contact: info@kdfoundation.org.au